2026 Annual Family Conference
Community · Research · Hope
Join Us
We invite all families and medical professionals to participate in our 2026 Annual Family Conference. Please complete the relevant forms below to ensure your access to the conference and contribute to our ongoing Natural History Study.
Virtual Attendance
Can't make it to Boston in person? Join our global community virtually. Access all Saturday research presentations via our secure Zoom platform. Email us at connect@curemapk8ip3.org to receive the unique meeting passcode and digital conference materials.
Conference Schedule
FRIDAY NOVEMBER 6
• Family Breakfast with Amy McCooe, Executive Director, The Wolverine Foundation
• Patient Natural History Study Assessments at Boston Children’s Hospital
• Evening Family Dinner & Social Hour
SATURDAY
NOVEMBER 7
Research Update: MAPK8IP3
• 8:15 am — Amica Müller-Nedebock with Dr. Platzer, Institute of Human Genetics, Leipzig
• 9:00 am — Dr. Andrew Carter, Cambridge
• 10:00 am — Dr. Matt Anderson, Oxford-Harrington Rare Disease Centre
• 11:00 am — Dr. Swetha Gowrishankar, University of Illinois at Chicago
• 12:00 — Break/Lunch
• 1:00 pm — Dr. Cameron Crowder, University of Alabama at Birmingham
• 2:00 pm — Dr. Wendy Chung and Alexa Geltzeiler, Boston Children’s Hospital
Your Data Matters
Participation in the Natural History Study is the most impactful action your family can take. By sharing your clinical journey, you provide the baseline data essential for developing best practice care guidelines and making MAPK8IP3-Related Neurodevelopmental Disorder 'trial-ready' for future therapeutic interventions.
Boston Local Resources
Accessibility in Boston
Boston is committed to being an accessible city. Most major transit lines and the historic Freedom Trail are wheelchair friendly. We recommend using the 'Accessible Boston' guide for detailed ramp locations and elevator status at MBTA stations near the conference venue.
